Who owns Healthcare data on Social Media?

What constitute healthcare data? Who owns it? Who has complete control over healthcare data?

These are the two general types of health data according to Wikipedia :
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A personal health record, or PHR, is a health record where health data and information related to the care of a patient is maintained by the patient.

An electronic health record (EHR), or electronic medical record (EMR), is a systematic collection of electronic health information about an individual patient or population


Patients owns and control their PHR.  The patient, healthcare professional and healthcare institution co-creates the EHR.  The healthcare institution houses and maintains the EHR. The same idea ownership exist in paper based systems of recording healthcare data.

The law provides that patients should have access to his or her clinic/ hospital records (EHR or paper based).  The controversy starts when patients want total control over their EHR. Social media sharing of health data fuel fears of privacy breaches for all stakeholders.  In this age of smartphones and social media, who owns healthcare data? More importantly, who is accountable for health data on social media?

These are the burning issues on #HealthXPh tweetchat this Saturday September 13, 2014 at 9:00 PM Manila time. I highly encourage both HCPs and patients to share their thoughts and opinions!

  • T1. What healthcare data can patients share on social media?
  • T2. If HCP names are redacted, does that remove need to secure consent before posting?
  • T3 .What can the HCP/patient do if he/she’s identifiable in any social media platform posted?

Follow #HealthXPh on twitter and join us on our regular Saturday tweetchat!